Nic's 4th Surgery, A New NSG and a Fancy Helmet

As many of you know, we got to Duke and back. Nic is doing great. Unfortunately, we did need to have an additional shunt revision. This surgery turned out to be a blessing as it led us to Nic's new neurosurgeon. It was through this surgeon that we finally got Nic a protective/head shaping helmet. The best part about the helmet is that is gives her more protection, and thus, more people can hold her! We celebrate every step that gets us closer, and closer to being a "normal" baby. Nic is rocking at PT. She is meeting every milestone with the exception of motor skills involving head control. This leads us to the next part of her journey, the question is whether or not to get CVR for Nic. CVR is a Cranial Vault Reduction surgery that would decrease Nic's head size (remember it's bigger than her mom's head right now) and allow her to gain head control faster. Remember with head control comes rolling over, sitting up, standing and walking, skills Nic is not supposed to gain until she is 3-5 if ever. Dad and I are buried in research. Until the next update, enjoy these sweet pics!